Anyone near Arnold-Chiari defect?

I was not long diagnosed with Arnold-Chiari defect. As soon as I found out I went online and found profusely of information but I would like to hear from folks that have be though it. My symptoms are very mild so I don't know what type is it (1 or 2) or if I will necessitate surgery or not yet (going to the specialist subsequent week) but meanwhile I would like to read some experiences if you would resembling to share.
Please don't post just links beside info since I can find those… I want true experiences.
Thank you so much!!


Answers:    well I am a 26 year frail mother of two and I have be suffering with frightful headaches and frequent other symptoms that I never knew could adjectives be linked to Arnold-chiari defect until a month ago. When I finally had a MRI done,and after years of suffering I found out that I enjoy Arnold-Chiari malformation type 2. I a moment ago saw my neurosurgeon yesterday and now I am going for some other test to see what type of surgery will best benefit me and to see if there are other complications due to A.C.M. From what I be told was that the amount of the tonsil that is to say sticking out of the skull and the symptoms determine what type the you have. Well I hope that adjectives goes capably for you, and I hope to hear from you !

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