Hi all; one of my friend is suffering from a few and far between disease called fibrodysplasia ossificans progressiva(FOP) which be earllier known as myositis ossificans progressiva.This disease cause muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joint. It can be said this disease is a very advanced plane arthritis/myositis ossificans. Does anybody have ever hear about it? Also can anybody suggest any homeopathic/unani/ayurveda or alloepathic doctor who may relieve in this luggage? Since arthritis have treatment surrounded by homeopathic/unani/ayurveda, I beleive they might have solution to this also. Please bequeath me the contact details of the doctor if you know any.If anybody want I can write the full detail of patient and also of the disease.Thank you so much, regard, nirupama.
Answer:
The International FOP Association --
http://www.ifopa.org/treatment.html... >> click on links for each screened-off area -- covers current treatment guidelines.
A recent article, from Greece, discusses their treatment for one case of FOP:
Benetos IS, Mavrogenis AF, Themistocleous GS, Kanellopoulos AD, Papagelopoulos PJ, Soucacos PN. Optimal treatment of fibrodysplasia ossificans progressiva near surgical excision of heterotopic bone, indomethacin, and irradiation. J Surg Orthop Adv. 2006 Summer;15(2):99-104.
http://www.ncbi.nlm.nih.gov/entrez/query...
For a genetic / familial overview, see
http://www.ncbi.nlm.nih.gov/entrez/dispo...
No clinical trials were reported on www.clinicaltrials.gov
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