Should you be able to feel the tubing from a vp shunt?
Answer:
Hi there! I can feel the tubing of my shunt from the back of the skull where it comes out, down the back of my ear, neck, over my collar bone. As I am sure I have more body fat than that of your son, that is where I stop feeling mine. The lump does sound like scarring as I also have one where they made the incision and a little more of a lump to one side where the tubing coils by the liver (right side). There really is no pain with mine, had mine done in May of this year, almost 2 months now. The only time it really bothers me is when I sleep too long on the right side where the tubing comes out and I guess it may squash it so it does not work correctly at night. I get a headache and that side of my head is sore. The headache can sometimes get pretty overwhelming. If your son is not acting out of the ordrinary, not pulling, touching, rubbing, crying or anything like that then he should be fine. Only worry if he starts to run a fever, his eyes won't raise up to follow your finger (called "sunset eyes"), starts throwing up or getting so lethargic that he can't stay awake. That could be signs of infection or malfuntion. I am sure you went through this all with your neurosurgeon though. The tubing can be felt and that is normal. I am glad to hear your boy is doing well and has passed that scarry surgery!
My best to you and your son, as always.
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As you may see not many have answered your question, Its difficult to diagnose when you can't see the patient. I myself would ask him does he have any pain at all. If he doesn't I would still consider calling an er gent care doctor or nurses station on this. I don't think its to normal if its pushing the skin out to a point to make scarring. See a doctor I believe this would be the best , if not your own a second operation. God Bless
The tube is placed under the skin so it's not unreasonable to think that you may be able to see/feel the tube.
As for the lump, that's probably where it goes into the abdomen and there may be a little scar tissue there.
I'd think it would be normal. If the neurosurgeon is not concerned, I would be comfortable with that. I am certain that the surgeon has done many of these procedures and knows what is within the normal realm.
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